Don't know what's changing in me...

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This is ... interesting for me to post, and a bit difficult. I don't share a lot of my personal life except with those close to me. However, this is a forum that would probably have more information, so I've reluctantly decided to post and ask for answers.

Situation: 53-year old male. Endocrine system is out of whack. Way out of whack. I've been testing low in T for years (low end of normal scale, or below). Lately, it's gone lower than low - and the E has gone up. Periodically, progesterone level has spiked as well. Let's just say that one lab thought they had a female sample, that's how far out of whack my hormones are. So I've noticed some odd things - both physically and mentally. First, the obvious physical - gynecomastia. Not pseudo, but true. Not giant hooters, but small, mostly innocuous breasts. If I have a loose shirt, one can't tell - unless it leaks. Enough of a concern that the doctor had me do a mammogram - which if you're a man doing is probably about the second most humiliating thing you can do. In the top 5, that's for sure. So, as one would expect with high E, real breast growth. Occasionally fluid production that has become nearly constant at low levels - a few cc at a time. Ignoring it doesn't stop; doc thinks there's possibly a prolactinoma or something similar.

Now for the weird ones. People at work say I'm far less assertive and / or aggressive. I'm far more diplomatic, and listen more. One co-worker told me that she'd noticed that I was a lot more emotional. Okay, I have to admit - I've read stories before that were touching; now, when I re-read them, I cry. Even stories I've written and read dozens of times during editing still make me cry.

What I'm dreading to know is what other changes might I incur from the low T and high E. I would suspect that someone who's done hormone therapy for transgender might have a point of comparison for me. I've been trying to read up on the endocrine system and hormone effects to see if I can learn anything. Some references are good, some suck.

Help! What other surprises might my body be developing? What other things - mentally, emotionally, physically - might change?

And yes, my endocrinologist is stumped. He's tried T replacement, but that stuff makes me want to rip someone's head off if they look at me wrong. It made me feel like a box-load of nitro - waiting for the first shock to explode. Couldn't do that. Tried phyto-estrogens to lock up the receptors and keep the body fooled into thinking that it didn't need any more true E. Didn't work. Got a growth spurt, though.

Advice, thoughts, strategies to deal with it, similar experiences I might learn from? Any or all of that. I need to find some sort of direction.

Comments

an idea

There is stuff freely available without a percription its basically a low dose steriod. Weight gain or similar i think its called Might help level out the t level for you.

You're not alone

erin's picture

Do a web search for Zoe Brain. She's an Australian scientist who went thru some of the same things you are going thru. Probably not the same cause but the echoes in your cases struck me.

Hugs,
Erin

= Give everyone the benefit of the doubt because certainty is a fragile thing that can be shattered by one overlooked fact.

Take Tee and See???

Andrea Lena's picture

...upon my recent visit to my endocrinologist (sigh...merely for diabetes), she reviewed my most recent bloodwork and noted that my tee level was on the very low end of 'normal.' She asked me if I wanted a supplement. I declined, but not for any gender reasons. I'm already at risk for prostatitis, with two biopsies already behind me, if you'll excuse the pun. I'm in 'no-girl's-land,' so to speak. My tee level is low enough that things have changed enough that they don't work the way they used to, even with pharmaceutical help. But the tee level is high enough that it exacerbates my fibromyalgia. I'm sure it might be a dilemma another might easily embrace, but it's really left me feeling bad about myself in that regard, since no matter which way I choose, I lose. Oh well. We'll always have Paris....

  

To be alive is to be vulnerable. Madeleine L'Engle
Love, Andrea Lena

I highly recommend

Frank's picture

The Hypogonadism2 group on Yahoo http://health.groups.yahoo.com/group/hypogonadism2/

Its an excellent resource for sufferers of Low Testosterone. Including TRT, controlling estrogen levels..etc

I'm on TRT and in addition my Endocrinologist has me on Arimidex 1/4 tablet a couple of times per week to keep E levels low. So that would be one way to get your E levels down, but obviously would just be treating a symptom and not the cause.

One of the biggest things I had before TRT was my thinking wasn't nearly as sharp as it should have been. Testosterone also helps regulate things like blood sugar, muscle strength, energy levels.

I really can't recommend the Yahoo group highly enough.

{{Hugs}}

Frank

Hugs

Frank

I've tried TRT several times

elrodw's picture

I've tried TRT several times over the years. I can't live with the results - _I_ don't like myself; I'm too tense and angry at everything - even on very low dose. My family hated it when I was trying it. So if it's a choice between higher T or relatively minor physiological changes and better mood with low T, I have to go with low T and the changes. I would like to understand what other changes I might see as I try to live with this.

Imagination is more important than knowledge
A. Einstein

Zoe Brain

This is the person Erin mentioned, Zoe Brain. I enjoy her take and view on things.
http://aebrain.blogspot.com/

She too had spontaneous changes so perhaps she could be assistance since she'd done a lot of research into her and similar conditions. There are resources available at her site.

Hugs
Grover

You could try another way...

Anti-aromatase. Block the aromatase and your body can't convert T to E, which is probably what's going on, whatever the cause.

http://en.wikipedia.org/wiki/Aromatase_inhibitor

Ask your doctor about that possibility...

EDIT:

Or you could just embrace the changes... that might be the easiest way... Best way? Who can know. None of us can tell the future.

Abigail Drew.

Tried that too

elrodw's picture

Didn't do much, which is why my endocrinologist is stumped. So far, it's not necessarily bad, apart from avoiding embarrassing wet spots from time to time. Kind of interesting, too, bcuz I sort of wondered what breasts felt like to the owner... I'd just like to know if there are any other changes coming my way? Has anyone who's done MtF hormone therapy noticed emotional changes, and if so, how big are the changes? What else might be in store for me if I try to live with it?

Imagination is more important than knowledge
A. Einstein

Pretty much...

All I've experienced so far are basically the same things you have. Completely. To the T, so to speak.

If your hormones start following a normal cycle, like I'm trying to simulate, then you may notice that things start being cyclical. You'll have basically two times of each month, every month, that you're going to have strange cravings, become more sexual, more emotional...

Your skin will likely become softer. Hair will grow softer, faster, perhaps finer, and in a different pattern. Body hair might change in pattern, grow slower, or stop growing...

There's lots of places online with great big lists of things you could notice.

Another thing that's going to likely change will be your taste buds. You're going to find you no longer like foods you used to love and love foods you used to hate. Even crave things you'd've NEVER touched with a ten foot pole.

Just look up stuff to do with the effects of the menstrual cycle and stuff to do with the effects of MTF HRT. The things you'll notice if you really do start turning into a girl will be a mix of both. Minus the bits to do with the physical aspects not possible without female parts we don't have.

Some stuff to start you off:

http://en.wikipedia.org/wiki/Hormone_replacement_therapy_%28...

http://www.self.com/blogs/flash/2012/02/how-your-menstrual-c...

Abigail Drew.

You're NOT Alone

Thank you for posting this, and know that you are not alone...

I am a 56 year old male and I have been going through similar changes. Last year I was diagnosed with gynecomastia. A mammogram confirmed I have breast tissue on both sides. My 'breasts' (although not really noticeable because of my excess weight) are getting firmer. I am have also been getting more emotional and some days I don't want breasts while other days I do want breasts (nicely shaped B or C cup, lately- maybe even D cup). When I started reading your blog I actually started to cry (for about 20 secs). Lately I have even started thinking how nice it would be to actually be a woman (maybe?). And yes I'm confused. My doctor wants to start looking closer at my gynecomastia and hormone levels. I've also been seeing a councilor for anger and other stress related issues. I think I'll likely be done with councilor next week, but I will talk about possibly seeing a gender specialist (if one is available in my area) in the near future.

Again, thank you for posting this. I will be looking closely at all the advice for possible use in my own future.

Hugs,
Mark <3

I'm not going for sympathy, BTW

elrodw's picture

when I post tales of what's going on physically. I have accepted that there are certain things that are ... unique ... about my body. I have accepted that TRT really doesn't work for me, and that leaves me with few alternatives but to live with (enjoy?) boobs, and some occasional leakage. (If they were bigger, would I enjoy them more :)

I'm at the stage in life that I seek two things - first, advice from people who are in or have been in similar situations, or otherwise have some knowledge they can share. Second, if I post what's happening to me in the forum, then maybe some who are in their own private hell, trying to deal with similar circumstances, might realize that they're not alone, and listen to advice and improve their own outlook or viewpoint.

Plus, there's a part of me that's been curious, since I noticed girls had "chest pillows", about what they were like, and after my wife breast-fed our firstborn, that part extended that to wonder (a little bit) what breast-feeding was like. So maybe this is some cosmic joke to give me a tiny taste.... I appreciate all the responses, both here and in PMs. I am not doing significant DIY hormone therapy - it can be dangerous. I'm not doing TRT, because of the adverse psychological reaction. I'm just dealing with what I see as the least-objectionable course of action. I also appreciate the tips of what might continue to happen if things don't change.

So, thanks and I hope someone found this useful.

Imagination is more important than knowledge
A. Einstein