I'll take Manhattan

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I spent last night at the Epilepsy Center of the New York Presbyterian Hospital in Manhattan. After a delightful hour of getting hooked up to electrodes and such, I enjoyed and hour and a half of uninterrupted writing, and I was glad for it; I can't wait to write when I'm not writing, and I can't wait to finish when I am. The most curious thing; the technician was a nice young man who actually had the same kind of face as Ben Kelly, my counselor character and alter-ego of Katie Kelly. I actually thought that a story could be written just seeing this young man and what kind of life he/she might lead. Anyway, the EEG and sleep study were much more involved than either procedure as administered in the past. I have a follow up with my doctor as well as the foremost specialist in the country regarding seizures and epilepsy-related conditions. The follow up is in three weeks, but I might get a call from my doctor before then. My meds help somewhat with the tremors, but the not knowing is still vexing. Even still, I have so many things going for me, even if I do cry over your collective shoulders. I know that God loves me, my wife and son and family love me, and I have so many new friends here that have embraced me and made me feel better about myself than I have in years. I thank God for all of you and I pray that each of you has a wonderful week. Don't forget to think and pray for Sephrena this week as she is undergoing tremendous physical hardship and hopefully will get some relief this week. God bless you all, and thank you for your prayers and kind encouragement.
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"She was born for all the wrong reasons, but grew up for all the right ones." Dio ti benedicta! 'drea

Comments

*hugs*!

...and good luck! ^__^

-Liz

-Liz

Successor to the LToC
Formerly known as "momonoimoto"

You Take Care Of Yourself Okay?

jengrl's picture

Hi 'Drea,

I think of you like a sister to me and I am rooting for you as you go through all of these tests. My own tests have come out okay (or at least I think so) I had an ECHO on my heart last Monday and my heart rate was almost normal through the whole thing. I had an Ultrasound on my testes on Friday. Everything appears okay there too. I was told to go to the second floor Radiology dept where the receptionist told me to use the female changing room. I got a gown off the cart in there and changed into it. I sat in the waiting area until I was called. This nurse had me lie down on the table and began prepping me. She then says to me, "If I had known you were a male, I would have had you change in the Men's changing room". I look at her with horror! I have been living 24/7 as a woman for almost 4 years and there is no way I would ever go into the Men's restroom. After she left, the technician treated me with the utmost professionalism and made it as painless as she could under the circumstances.

Hugs,

Jen

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I also

echo the hope that you may come through the medical crises safely and strongly.

Jengrl, that is so wrong. Even when I was pre-op, I received nothing but respect and help from the medical profession. If someone treats you less than professionally, surely that is grounds for disciplinary action. Whether or not you have a birth defect should make no difference.

Susie

Pre-op

Andrea Lena's picture

I have no experience in this particular aspect of our mutual interest. However, it would seem to me that as many nice and kind folk there are out there that help and console and encourage in this part of your journey, there seem to be as many who think that pre-op means that they should be PRE-disposed to being Oppositional to your choice. I have worked in the mental health field for years, and I still run across folks that believe that somehow since they are not familiar with or deal with a particular issue or condition, that gives them carte blanche to mistreat and judge people. Hopefully, and prayerfully as well, this sort of treatment will stop, although I'm not prepared to hold my breath on that one. Either way, all of my prayers and thanks for all of my friends here. God bless! 'drea

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"She was born for all the wrong reasons but she grew up for all the right ones." Dio ti benedicta! 'drea

  

To be alive is to be vulnerable. Madeleine L'Engle
Love, Andrea Lena