Wasn't It a Lovely Day...

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Wasn't It a Lovely Day...
...To Be Caught in the Rain?


 
A long day with showers, sprinkles, mists and downpours (we were inside) on Friday as Mrs. D and I both had appointments with our immunologist in Manhattan. She's recovering from headaches and fatigue due to a back injury from work, and she's also been helping me a great deal with my recovery.

I am having decreased success with chronic fatigue and fibromyalgia. Our doctor expects that it's due to increased levels of stress from new flashbacks. My therapist and I both agree that in spite of that, I'm doing very well regarding the PTSD in that I am coping so well with memories that might have had me hospitalized when this all began two years ago. We both had blood drawn; both of us are dealing with thyroid problems and we and our son all have tested positive for the Epstein-Barr virus.

The virus attributed to Chronic Fatigue, HHV-6, is present in both of us as well at greater than 'normal' levels, and our doctor remains concerned that it is still present in high levels in both of our systems. As Susan put it, my immune system is..."really not doing so good!"

http://www.hhv-6foundation.org/associated-conditions/hhv-6-a...

On a positive note, I've completed and submitted most of the application for disability, but as my dear niece reminds me oh so gently, it's not a reason to give up. With God's help and the love and support and prayers of you folks, I hope to recover enough to return to counseling, but for now, the income will help.

And the day ended well. It stopped raining and we met our son for dinner at a nice pub just a few blocks between his hospital and our doctor. It's been interesting; driving him to the bus stop at 5:30 and picking him up again at 6:30 in the evening; long days for all of us, but a blessing for him since he was employed less than a week after he graduated while folks in his field who graduated the previous year remain unemployed. What a blessing for all of us and really a reward for all of his hard work.

Thanks for reading. Like Annette I suppose, I'm also on a road to myself. Mine has taken quite a few detours, and my journey to trans-land has gotten stuck in a bit of traffic, but we're enjoying the nice stops along the way. Right now the "Out" Meter has been turned off, and we're parked in the 'I don't think either of us is ready to talk about this' zone, you know. I'm still on the road, but not going anywhere any time soon. However, everything, even the not-so-good stuff, is good. It helps to have a wonderful family, and it helps to have nice travel companions like yourselves along the way as well! Thank you! Andrea

Comments

Twice the hugs from you?

Andrea Lena's picture

...I'll take them any day of the week. This time next year in Fairfield! (broad grin)


Dio vi benedica tutti
Con grande amore e di affetto
Andrea Lena

  

To be alive is to be vulnerable. Madeleine L'Engle
Love, Andrea Lena

Oh Andrea...

I am sorry to hear about your health, and hope sincerely that it can improve soon.

I suppose I've also been embarked on a road to myself since joining BCTS earlier this year as well. Beginning with ending my depressions so I could reach into myself and search my own soul for its cause, finally reaching the point where I'd torn down my fortress and came out to myself, and now I'm currently embarked in coming out to those around me.

I wish you the best in your own journey, as you have been doing in mine,

Abigail Drew.

Abigail Drew.

Good luck in your battle

Good luck in your battle and I hope the evential conclusion is happy.My journey to trans-land will never be,the gates are shut,but I wish you and others like you the best of luck in your own journeys.

devonmalc

Oh Andrea...

I so get what you're saying in this. I love those days and moods where even the bad's actually kind of good. Life's even good when it's bittersweet chocolate or a pinch of good salt on dessert.
I'm happy things are going so good with your son, I'm sure he's more than a credit to you and the Mrs.
I honestly do think you to are going to make it. She knows, and if it was going to really go bad I think it would've already. I'm truly hoping in my heart she gets to see the real you and like in so many of your stories these two beautiful girls will get to fall in love with each other all over again:)

Love You Andrea:)
*Great Big Hugs*
Bailey.

Bailey Summers

Out

Drea, I have followed your various twists and turns, as your ficyion is read and assumptions made.There are limits to what each of us can do, but simple recognition is one hell of a start. I will never be pretty, but that doesn't matter. My acceptance by people that do matter is what has helped me through the years, particularly my brother's immediate reaction of "Oh, I always knew THAT about you!"

People are stronger than we can imagine, especially family. You will find your own way...

being parked

I know how that feels hon. I'm glad things are a little better, at least.

Dorothycolleen

DogSig.png

Not talking...

Yeah, I get that "not talking about it"... stuff. My wife's admitted, on more than one occasion that she would prefer that this not be happening and she doesn't "enjoy" talking about it. I even understand this... Yesterday, she acknowledged that she does have to MAKE herself listen to what's going on, and participate, to some extent. You may ask why, but that's for MY blog. I'll not derail yours. LOL

You've a LOT on your plate - you and the Mrs. I'm glad you're managing to get through things! When you say you're on "hold"... I know what that's like. We CAN do it for a while. (Yes, it can be done! Been there, done that, and eventually paid the price...) As long as you can pay the price, willingly, life is probably "easier".

You're both looking at grass from the right side, still. Despite all you're going through. Best of wishes. Who knows what the future will bring. We all take different roads. Most of our roads have numerous branches. Which branch we take... Nobody should make that decision for us, and many of them we shouldn't necessarily make on our own. My road is not yours, nor is it identical to that of any others. Your road is different, but, it is YOUR ROAD. May you find joy on it - to go along with the hard stuff.

Best of wishes,

Anne

Not Parked, but traveling in 1st gear - no wrecks

RAMI

Dear Andrea:

I have to disagree with you dear friend. I have followed you since made your first visit to this site. When you first came here you were heading towards a wreck. Then there were times you were in R gear going in reverse. But now you are traveling on the road towards a destination. Perhaps you may not reach your ultimate destination, and may have to settle for reaching a different destination. But you are not parked. Perhaps you are only traveling in first gear, and having difficulty with the clutch. No matter how fast you are going, I truly believ it is forward.

Your Friend

RAMI

RAMI

I'm Doubling Kristine

joannebarbarella's picture

Raise you a dozen hugs, and I don't think you're in "Park" either. Just think though...you could be like the rush of water swirling round the drain-hole before it disappears down the gurgler, but actually you are prgressing at a slow and steady decorous pace.

You have told your wife and your son has made you proud....definitely not standing still,

Joanne